Thursday, March 7, 2013

There ya have it . . . . .

Hello out there?
 
Anybody still read this thing?
 
I've been pretty terrible at posting.  I guess 3 crazy boys are my excuse :)
 
I am posting today for one thing, and one thing only - TO VENT. 
 Oh, how I need to vent!! 
 Feel free (if you still read this thing) to look over this post and wait for some pictures of my adorable baby :)
 
Just so ya know . . . .
I know my oldest son.  I know what he likes.  I know what he does NOT like.  I know what makes for a bad day in Autism World.  And yet, people still do not trust that I know this.  People who have no clue what autism is about.  Let me give you an example . . . .
 
The other day I knew our day was going to be a doozy.  Christopher missed the bus.  He missed the bus because I forgot to remind him to keep walking and not to play in the snow until he got to the bus stop.  Yes, I have to remind him of this every day.  When something goes wrong in Christopher's schedule, his whole day can be affected.  I anxiously got all my kids in the car to go to school.  Just then, the phone rang.  It was his therapy place.  His occupational therapist was sick and so they only needed him for an hour.  His therapy is clear across town.  To bring him there for an hour is ridiculous for me.  Packing and unpacking all the children is like a circus.  I told her to just cancel his therapy for the day.  I told Christopher and told him to tell his teacher.  Another change in his schedule and he was getting even more anxious.  I got him to school and then his therapy called back and decided that he needed to come.  Ahhh!  Now I have to change his schedule for a 3rd time!!  They insisted and so I called the school and changed it again.  He had a rough day at school after that.  Ripped papers, wouldn't do his handwriting.  His teachers ask me if I forgot to give him his medication that day.  Nope.  They ask me if I can do more volunteering.  I barely had a shower that day.  No makeup.  I tell them not this week.  They don't know that in my heart I would spend every day in that classroom if I could.
 
We survived all that. 
 
When he got home, he asked if he could play at a friend's house.  I knew that he was feeling a little anxious, but someone that day had told me that I worry about him too much and that she didn't get what the big deal was.  I doubt myself.  Am I an overprotective mother?  I let him go to his friend's house.  He comes home and starts into his tantrums, his anxiety, his anger.  He is soooo hard to calm down.  I am frustrated and tired. 
 
Then, a few people from church call to tell me about a relief society activity that night. 
 I tell them I won't make it. 
 
"There will be babysitting there!"
Me :  "I'm sorry, I just don't think I will make it and Davin won't be home until late."
"Oh, just come!  You will be fine!" 
I can tell in their voices that they do not believe me and think that I am just trying to get out of coming.
 
I get off the phone feeling antisocial and like everyone in the world knows it.
On top of all this craziness I have two other children to take care of, a house to clean, meals to make, homework (it takes him almost an hour to write ONE sentence), and my church duties on Tuesday and Sunday . . . . all without a husband (he is working hard for our family this busy tax season :) ) 
Some days it is just too much.
 
I have one thing to ask in all of this venting -
If you know someone with a child who has ANY form of autism, GIVE THEM A BREAK!  If they are antisocial, it is not because they want to be.  If they can't make it to that birthday party or that easter egg hunt, it is because they are protecting their child.  If they sound overprotective, it is because they have to be in order to survive their day.  
 
I know tomorrow I will feel better and I will move on with my life - loving my son and all of my blessings along the way.  But, for today - I am tired. 
There ya have it :)

10 comments:

Julie said...

I have recently decided that I am going to try to stop giving advice because the truth is I don't know what I'm talking about. And I'm learning that when I think I do know or understand something I quickly learn that I don't get it, that there is a lot I still don't know. All the things I say or other people say to me, with only good interests at heart, tend to not be very helpful because we can't really understand things we haven't experienced. I've decided what people really need is only a listening ear. Thank you for reminding me of my commitment. Thank you for ranting, it makes me feel less guilty about spending so much time doing it on my own blog. ;) I hope you all have a better day tomorrow!

John and Tawnya Hoover said...

kristen, i cant even imagine dealing with this everyday. the lord chose you to be that sweet boys mother and i believe there is a special place in heaven for people like you. you help me keep perspective in my life! you are wonderful. thank you!

Britt said...

You go girl!!! Change has gotten easier for Shai but there was a time that missing the bus would have ruined a day for us as well. I still brace myself for when changes have to be made to the schedule and hope it's not too much. We have tantrums at our house too. Like screaming so loud the mom goes and hides. It happens over brushing teeth and getting dressed by herself. And other seemingly simple things. I hear you.

adorable pearsons said...

You sweet, wonderful, strong mother! May you continue to fight the battles you need to, knowing that you are his mother- his voice- his strength- his example! He is so blessed to have you stick up for him and fight the hard fight for him- even living in a non-understanding world. I so adore you! ps. please let's see each other before I have this baby and become a complete hermit :). We so love you and all of your boys!

Sarah said...

Thank you for your honesty. You are amazing. And I also love your photo dumps.

Jessica said...

You are amazing and I admire your ability to say "no" when you need to. You gotta do what you gotta do - for Andy and Matty and Chris AND you. Keep it up and know that you are incredibly loved by so many people. Like me!!

Ken and Jos said...

I'm sorry to hear you had a rough day. Hang in there!

Eva said...
This comment has been removed by the author.
Eva said...

Remember that YOU ARE the AUTHORITY here. You can forget about what other people may or may not be thinking. Words can not do justice to how I feel about you being the mother of that amazing, lovable Chris.

Unknown said...

You should let me take your baby during preschool on Tuesday's and Wednesday's and go over to the school and help out in his classroom. I would love to do that for you. And relief society is not manditory...I should know...I plan the activities, so never let missing one stress you out. Family First Always.

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