Monday, January 10, 2011

You are not alone . . . .

There I was.
In the corner with two 2 years olds, playing cars, and I was crying.
Yep, me.
They looked at me strangely, but (the wonderful thing about two year olds) they didn't ask any questions.

I was substituting for Davin in the nursery at our church when Christopher's preschool teacher stopped by to talk.
I love this lady.
She asked if I had heard the news yet.
I hadn't.
She was moving . . . in two weeks.
No more preschool.
She choked up a little when she said "I'm sorry. I'm sorry to do this to Christopher."
In my mind I became the little girl who's best friend is moving away.
I wanted to grab her and plead for her to stay.
Instead I put on a big smile and told her congratulations.

When she left, the tears started falling.
I kept telling myself "It's just preschool! It's just preschool!"
But, it's not just preschool.
Christopher was comfortable there.
He felt included.
He felt special.
He didn't have tantrums.
His anxiety was almost non existent.
Can I find another preschool good enough?

As a mother of a child with his problems it's exhausting trying to explain his issues OVER and OVER and OVER again.
My heart breaks every time I have to tell a school or a playdate or a swim class why he may be a little different.
I want to tell them he is funny, he's smart, he's charming, he's special.
Deep down I know that this is a battle I will have to fight OVER and OVER and OVER again.

Just when I think I am alone in my fight I always find something to push me through.
God blesses me with tender mercies.
I found this blog post from A Diary of A Mom.
She is an amazing mother of an autistic daughter.
I needed this and I am sure it could help you.

My sweet friend,

I know how much you’re hurting. I so desperately wish I could lift you from this place.

You’re not alone. Please hear that. Really, truly HEAR it.

YOU. ARE. NOT. ALONE.

I say that because I know how lonely that place feels. Especially when the people within arm’s reach don’t get it.

But I do. I get it. I promise you, I do.

We push and we push and we push and God, we push some more, don’t we? And sometimes we have absolutely no idea how we can possibly keep pushing. Sometimes we can’t.

Do you remember Sisyphus from the Greek myths? Poor schmuck was punished by the Gods – for what I don’t remember – and his penance was that for the rest of his life he was to push a boulder up a hill. Every time he pushed it, he managed to get just a little bit closer to the top. And every time he got incrementally closer than he had on the last run, the damn thing came rolling down. EVERY. SINGLE. TIME.

So let’s review – Herculean effort. Barely perceptible progress. Dramatic fall. Dust off. Start again.

Sounds familiar, doesn’t it?

And sometimes – sometimes – the pushing is just too much to bear. And we sit for a moment. We try to breathe. And then we find ourselves paralyzed at the bottom of that hill.

We chide ourselves because we know better than to stop moving. It’s the mantra of this club, isn’t it? Never Stop Moving. So we slap a palm to our forehead and shout to the heavens, “How could I have let myself stop moving?” And the guilt and the shame cement our feet to the ground. And now, no matter how much we may want to, we CAN’T move.

And then it starts. A pebble here, a pebble there. The business of life begins to fall to the ground. A rock and then a bigger rock. The stuff that simply must be done to keep ourselves, our family, our children moving forward. The ground is littered with What We Just Can Not Do Right Now.

And while we try to catch the falling rocks, there’s still this business of the godforsaken boulder. And the feet cemented to the ground.

There’s a low rumble, then a deafening roar as the avalanche begins. And really? There’s nowhere to hide. We duck and cover the best we can.

***

We all have moments that flatten us, my friend. And sometimes those moments are days and sometimes those days are weeks. But when the weeks turn to months and the rocks are piling up so high that they are threatening to destroy us, it’s time to get some help. Some REAL help.

And I know that there’s no easy fix. I know what it means to ‘get help.’ It means sifting through the rubble. It means facing down the demons that you’ve worked so hard and for so long to stuff away. And it’s terrifying.

I get that. Far more than I’d like to admit. I get that.

But here’s the thing. You’re facing down those demons every day whether you acknowledge them or not. They’re riding shotgun, sister. Always. And they’re sucking the life out of you.

Saying their name doesn’t make them real. They’re already plenty real. So say their name. Stare them down. Take back the power that you’ve given them. Release yourself from their strangle hold. It’s time.

You can do this.

First thing – Step out of the shoes that are stuck to the ground. Walk away from the guilt and the shame. You don’t need them anymore. You never did.

Ask for help. REAL help.

Walk in and say, “I’m ready.” If you don’t feel it, LIE.

Because the rocks don’t stop falling. The business of life simply doesn’t cease. The boulder has to be rolled up the hill. Our kids demand that we be whole and healthy and present.

And we deserve a life. A life with joy. A life with manageable demons.

It’s too much to do alone. Those dang demons are well-fed after all these years. But it CAN be done.

I’m here.

I’ll help in whatever way I can. I’ll even keep an eye on the boulder while you do what you need to do.

Please.

Take care of you.

With love,

Jess


Why do we forget that there are others who know how we are feeling?

Why do we forget that others have so much more to bear?

I would like to say that I don't have pity parties.

That I can push that boulder up the hill and never complain, but I can't.

Sometimes, I am the crazy woman in the corner with the two year olds, crying. :)

What a journey life is!

I am thankful for the help I receive along the way.




Thursday, January 6, 2011

Things We Love Lately . . .


(stole this pic from his facebook)

I love that my older brother got into the Nuclear Medicine program at University of Utah.
6 spots, 3 had to be from THEIR bachelor program (he wasn't), and hundreds of applicants. He did it! Absolutely amazing! So happy for him and his wife. After all their years of hard work and waiting for the right opportunity it has paid off. Congrats you guys!


I love that I caught these guys splashing each other in the tub.


Love?
Did I say love?
I love how cute they are - don't love the water on the floor.



I loved these books.


To be honest, I didn't want to fall into an "everyone loves these books" trap and the premise did sound pretty gruesome.
However, I got so much out of them.
The fight for what's right, the love of family and friends, the courage to be yourself.
Am I a crazy person?
Did anyone else get that?



I love that I got this for Christmas.


A candle wax warmer. Soooooo wonderful. It will probably save this candle loving girl millions of dollars :) Thanks to my sweet sister in law, Kelly.



I love that these guys sat down together, shared a few drinks ;), and had some fun with their trains without one scream.


Yes!


I love that I found these tea cups at the thrift store.


They are old, beautiful, and going for 20 bucks each on antique websites.
I bought them for 50 cents each. Not bad!
They are so pretty with my $50 plate find I posted about last year.


Okay, now something I don't love too much. My little brother (who I do love) is going in for heart surgery on Monday morning. Please say a little prayer for him and for his sweet wife.

Tuesday, December 28, 2010

Peace on Earth

Wow.
What a wonderful couple of weeks it has been!
I hope you have had just as much fun.

The 21st was our Christopher's 5th birthday.
5!
I can't believe it.
Time really does fly.

He had a great time.
We made him a Timmy Time birthday cake (a show on the disney channel),


gave him some scooby doo presents (his greatest love),


and he got lots of spoiling from his grandparents, great grandparents, and aunts and uncles.
Thank you everybody!


He got two movies for his birthday so we had two movie parties.

I loved it.
It's so fun when your kids finally get to the age that they will sit through movies with you.
I loved hearing their little giggles and exclamations throughout the show.


Our Christmas was so so so so wonderful.
Santa Claus came.


Andy was the first one up this year.
He went and woke his brother up and then continued to beat him with a plastic golf club until he was fully awake.


People wonder why I say "This kid is going to murder me in my sleep!"
Now I have photographic evidence!
Let me zoom in.
Look at that face!


Pure evil ;)


After Christopher's beating ;) they raced down the stairs


to look in their stockings, open presents,


and just have fun playing together.



Our big present to all of us was a Wii.


It is really good for developing Christopher's motor skills and hand eye coordination which he needs badly.
Buuuuut, let's be truthful, I think WE (Mommy and Daddy) were the real ones who wanted one.
We've had fun.


We then headed to Grandma and Grandpa's house where we had a fabulous time with them and all the aunts and uncles.
We got footy pajamas on Christmas Eve (thanks Mom for modeling :) ) and I actually got IN a picture.


It's a Christmas miracle!


We had lots to celebrate this Christmas.
An engagement!


My little brother is getting married to a fabulous girl.


And, a new baby on the way!


Congrats to my little brother and his adorable wife.


It was truly a wonderful Christmas.
One of those days where you literally get to sit back, take a deep breath, and actually feel like there is true peace on Earth.
Hope you all had a little peace on Earth this Christmas season.

We are headed to Grandma Eva's and Grandpa Barry's for New Years!
Can't wait!
Happy New Year everyone!

Friday, December 17, 2010

The little things . . . .


Yesterday was my birthday.
It happened to be a WONDERFUL birthday.
I got THE best present I could have asked for -

My boy was in a school program.



All parents think it is a treasure to see their children acting cute and singing songs, but this was beyond a treasure for me.



The last program he was in resulted in him running off the stage screaming and then trembling in my arms for the next 15 minutes.
The noise, the people staring at him, the "unknown" of everything was too much.

This program was different.
He went up there with a huge smile on his face.


He performed every song. Did the dances and hand gestures perfectly.


The only word I can use to describe it is beautiful.
It was beautiful to see my son beaming, feeling like he is a part of something special.

The teacher did a spotlight on each child.
When the teacher got to Christopher she looked at me and we both started crying.


She knew what I knew
.
She knew that this was more than just a program for us and for Christopher.
This was hope.
Hope that he can do great things.
If there is one thing autism has given me it is the ability to relish in the little things.
The little things are important.

She talked about how special he is, the zest he has for life, and that she loves that every day after preschool he says "Bye teacher! Have a good day today."

Christopher was so proud.


So were we.

Tuesday, December 14, 2010

Things We Love Lately


I love Andy's tree decorating technique.
It took him maybe 30 seconds.
He threw the ornaments on in large clumps, stood back to admire his work, said "Dare (there). All done!", and left to play.


Efficiency.


I love that my kids are asking for toys that I have no idea what they really ARE.
No, seriously.
I was waiting for that day.
Christopher wants a zhu zhu pet.
It has been so funny looking at the stuff in the store.
Talking to fellow customers, complete strangers.
It's like learning a new language.
Parent language.
"Does this guy have to have this outfit?" "Does this part go with this thingy?"
I honestly saw a lady walk away in tears after trying to figure out what to get.
Seriously, it makes for some interesting Christmas shopping and I kinda like it.
(Is that weird?)


What do these things DO???


I loved this sunset the other night outside our back door.


Nothing makes me happier.


I love my tacky, Christmasy house.


I love providing my kids with that tackiness :)
Can you imagine growing up in a house that looked like this at Christmas? (Oh wait, maybe you did. Did you love it? I wanna know.)


BEAUTIFUL, but NOT fun.


We love Auntie JJ (Jamie).

They love her.
They love that she will play toys with them.
Play games with them.
And, just love THEM.
We love you Auntie JJ!

We are loving these last couple weeks with our Daddy.
He leaves us soon for busy season.
At his work Christmas party they gave the wives these papers to hang on our fridge that said :
"We interrupt this marriage for tax season."
It's coming.
We are so grateful for our Daddy and all his hard work.

What are you loving lately?

Thursday, December 9, 2010

Coal in his stocking . . . .



I asked the Christmas question today.




Me: "Christopher, have you been naughty or nice this year?"
Chris: (without hesitation) "Nice. I'm a good boy, Mommy."
Me: "Christopher, do you think Andy has been naughty or nice this year?"
Chris: (without a teeny tiny ounce of hesitation) "Naughty. He's been naughty, Mommy."



So much for the season of brotherly love!

Saturday, December 4, 2010

There are very lovely things about Holland . . .


My boys are rough housing.
They've discovered that their plastic golf clubs make excellent swords.
Swords that they can whack each other with, cry, and then continue pummeling each other with while laughing.
Before we started having some issues with our Christopher, I probably would have laughed and grabbed them away.
Now I just can't bear to do it.
I see my Christopher playing with his brother and my heart soars.
They have been "Buddies" for a couple days now.
"Normalcy" can be so so so so refreshing.

I found this story and I am in love with it.
It is about how a mother feels when she finds out her child has a disability.
However, I think it can be for anyone who has had something happen in their life that they were not planning on.
Isn't that EVERYONE!?
Enjoy.

Welcome To Holland
by
Emily Perl Kingsley


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.




LinkWithin

Blog Widget by LinkWithin